长期COVID中的社区参与:来自波士顿COVID恢复队列的见解
Marisha E Palm1,2, Callie A Gu3, Ingrid V Bassett4,5
1Tufts Clinical and Translational Science Institute (CTSI), Tufts University, Boston, Massachusetts, USA.
概括
社区参与长期Covid研究至关重要. 建议包括专门的资金,早期参与参与专家,并授权社区成员担任领导角色,以提高研究成果的公平性.
科学领域:
- 公共卫生 公共卫生
- 临床研究 临床研究
- 社区参与 社区参与
背景情况:
- 美国国家卫生研究院在2021年启动了多中心观察性研究"研究COVID以增强恢复 (RECOVER) ".
- 六个波士顿学术医疗中心成立了波士顿COVID恢复队列 (BCRC),作为RECOVER计划的一部分.
- BCRC开发并实施了一个社区参与模式,分享其经验和建议.
研究的目的:
- 分享BCRC社区参与模式的经验教训和建议.
- 在长期的Covid研究中为未来的社区参与策略提供信息.
- 通过有效的参与,增强长期COVID研究的股权影响.
主要方法:
- 建立了一个BCRC社区伙伴关系表,与多种利益相关者合作,包括社区合作伙伴,股权领导者,研究人员和卫生系统合作者.
- 共同制定了一份宪章,概述了研究,教育,临床护理,社会支持和政策变革的目标.
- 通过多种沟通道,让患者,提供者,护理人员和立法者参与.
主要成果:
- 面临的挑战包括流行病的不确定性,参与的结构性障碍,以及不同的组织结构.
- 通过投资领导力,包容性网络建设,联合制作,灵活的沟通和集中社区和患者,取得了成功.
- 与立法机关联系在一起,以影响更广泛的政策影响.
结论:
- 医疗保健资助者应该为社区参与研究分配特定的时间和资源.
- 研究联盟必须从项目开始就将社区参与专家纳入决策角色.
- 社区成员应该在参与研究的努力中获得突出领导地位.
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