扩大自闭症证据库:增加参与者代表性的策略
Maira Tafolla1, Catherine Lord2
1University of California, San Francisco, USA.
Autism : the international journal of research and practice
|December 3, 2025
概括
自闭症研究需要更多多样化的参与者,包括多语言,低收入的个人. 本研究详细介绍了代表性不足的拉丁裔家庭的成功招聘策略,以提高自闭症科学普遍性.
科学领域:
- 神经发育障碍研究 神经发育障碍研究
- 临床心理学和精神病学
- 健康的社会文化方面.
背景情况:
- 自闭症研究样本通常主要是白人和英语使用者.
- 这种缺乏多样性限制了研究结果对代表性不足的群体的概括性.
- 多语种,低收入和种族多样性的人在自闭症研究中显著不足.
研究的目的:
- 为扩大自闭症研究样本中的代表性辩论.
- 讨论包括代表性不足的人口的实际策略.
- 介绍一个成功招募特定代表性不足群体的案例研究.
主要方法:
- 从低收入家庭招募并留住94个西班牙语-英语双语拉丁语家庭.
- 研究的重点是在大型城市地区和周边社区的评估验证.
- 详细的社区参与和与服务组织的合作.
主要成果:
- 成功招募并保留了94个拉丁克斯家庭的多元群体.
- 参与代表性不足的人群参与自闭症研究的可行性.
- 确定了社区外展和家庭参与的有效策略.
结论:
- 文化敏感的策略对于吸引多样化,低收入人群参与自闭症研究至关重要.
- 增加代表性确保研究结果适用于不同的人口群体.
- 这项研究为未来的研究提供了一个模型,旨在在自闭症科学中实现包容性.
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