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探索父母对脑儿童所管理的看法:一个范围审查协议

Sharvi Desai¹, Asish Das², Alphy Anna James¹

¹Department of Occupational Therapy, Manipal College of Health Professions, Manipal, Karnataka, India.

|December 3, 2025

概括

脑性麻 (CP) 儿童的父母面临的挑战是所独立. 本综述探讨了他们为为家庭开发更好的支持和培训计划的观点.

科学领域:

儿科儿科儿科
康复医学康复医学康复医学
关于残疾人的研究.

背景情况:

脑 (CP) 是儿童运动残疾的主要原因,不成比例地影响低收入和中等收入国家 (LMICs).
患有CP的儿童 (CwCP) 经历了严重的障碍,由于障碍,影响了他们的自主权和尊严.
CwCP的家长在管理所挑战时经常承担大量的情感,身体和社会负担,可用的量身定制干预措施有限.

研究的目的:

对父母对脑儿童 (CwCP) 的所管理的观点进行范围审查.
从家长的角度来看,确定与CwCP的所相关的战略,挑战和未满足的需求.
为制定以家庭为中心的干预措施和未来的研究方向提供信息.

主要方法:

范围审查遵循乔安娜·布里格斯研究所的指导方针和PRISMA-ScR框架.
在PubMed,EMBASE,CINAHL,Scopus,Web of Science和灰色文献中系统地搜索英语全文文章 (2014-2024年).
从包含的研究中提取的数据进行主题分析,重点关注父母的观点,挑战和18岁以下的CwCP所的所策略.

主要成果:

(即将到来的) 关于CwCP的所管理中的家长战略,挑战和期望的主题综合.
(即将到来的) 识别当前文献和现有干预措施的差距.
(即将到来的) 了解家长的经验,以指导开发实用,基于证据的程序.

结论:

父母的观点对于为患有脑 (CP) 的儿童开发有效的所支持至关重要.
这次审查将突出关键的挑战和成功的策略,为定制干预提供信息.
调查结果将有助于提高CwCP及其家属的所独立性和生活质量,特别是在LMICs.

关键词:

孩子孩子孩子孩子孩子孩子儿科医生儿科医生儿科医生父母父母父母父母父母父母审查审查审查审查

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