混合身份是一个身份:拥抱参与研究伙伴关系的人
Ellen Wang1,2, Trinity Lowthian3, Linda Truong2
1Arthritis Research Canada, Vancouver, Canada ewang@arthritisresearch.ca.
BMJ open
|December 3, 2025
概括
在健康研究中,患者和公众参与 (PPI) 需要承认所有团队成员的多维身份. 拥抱真实的自我和认识到复杂的角色促进了包容性,严格的研究伙伴关系.
科学领域:
- 卫生研究 卫生研究 卫生研究
- 协作科学 协作科学
- 患者参与 患者参与
背景情况:
- 患者和公众参与 (PPI) 越来越多地成为健康研究的组成部分,影响优先事项和研究设计.
- 现有的文献广泛涵盖PPI的好处和挑战,但忽视了研究团队内多个身份的复杂性.
- 传统的研究结构往往无法适应患者,公众,学者和临床医生之间的流动角色和共同目标.
研究的目的:
- 探索患者,公众,学者和临床医生之间的共同身份如何影响研究伙伴关系.
- 通过检查患者/公众同时作为学者或临床医生的潜力,挑战严格的界限,反之亦然.
- 讨论交叉身份对协作研究动态的影响.
主要方法:
- 一个跨学科的观点合成文学,经验知识,和生活经验.
- 批判性地检查患者,公众,学术和临床医生的身份的交叉性.
- 探索研究团队中与伙伴关系适合性和身份复杂性相关的紧张关系.
主要成果:
- 研究伙伴关系经常强加严格的标题,忽视了参与者的多维身份.
- 导航特权和共同责任在协作研究环境中提出了挑战.
- 忽视角色的流动性阻碍了患者和公众参与的全部潜力.
结论:
- 推进健康研究,实践和宣传需要拥抱真实的自我,并认识到团队成员的全部复杂性.
- 承认不同的观点和生活经验对于有效的协作至关重要.
- 研究小组成员之间的共同责任对于生产严格,高质量的证据至关重要.
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