从风险感知到行动:血液造血干细胞移植患者自我管理的定性研究
Xiaoyan Yu1,2, Zhizi Xiao1,3, Xuee Li1,3
1Department of Clinical Nursing Teaching and Research Section, The Second Xiangya Hospital of Central South University, Changsha, China.
Cell transplantation
|December 4, 2025
概括
中国造血干细胞移植 (HSCT) 患者因风险感知和低自我有效性而面临自我管理挑战. 有效应对包括数字工具,专业建议和社会支持.
科学领域:
- 血液学 血液学 血液学
- 移植医学 移植医学
- 健康心理学 心理健康心理学
背景情况:
- 造血干细胞移植 (HSCT) 是一种复杂的程序,对患者的自我管理有重大影响.
- 了解患者对风险感知,自我管理挑战和应对策略的看法对于改善移植后护理至关重要.
- 健康行动过程方法 (HAPA) 提供了一个框架,用于检查健康行为变化所涉及的心理过程.
研究的目的:
- 为了探索风险感知,自我管理的挑战,和应对策略在中国的HSCT患者.
- 了解HAPA框架在引导HSCT后自我管理行为中的作用.
- 确定影响该人口自我管理的障碍和促进者.
主要方法:
- 一个描述性的定性研究,使用有目的的抽样.
- 从中国中南部的一家医院招募了20名HSCT患者.
- 以HAPA模型为指导的半结构面试,使用主题和框架分析进行分析.
主要成果:
- 风险感知和自我有效性是HSCT患者自我管理的关键动机.
- 主要的自我管理障碍包括症状控制,生活方式调整,心理适应和财务问题.
- 成功应对策略包括数字工具,专业指导,日记和社会支持网络.
结论:
- 医疗保健专业人员应在移植前阶段利用高风险感知和自我有效性,以鼓励自我管理.
- 在放任后的早期时期,定制的支持和资源是必不可少的,以应对风险感知和自我有效性下降的问题.
- 干预措施应侧重于弥合风险感知和自我管理行动之间的差距,以提高患者的治疗结果.
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