数字心理社会工具和干预措施,以支持多发性硬化症患者的非正式照顾者:系统审查
Giorgia Giusto1, Silvia Poli1, Angelica Filosa1
1Section of Clinical Psychology, Department of Neuroscience, Biomedicine and Movement Science, University of Verona, Verona, Italy.
Multiple sclerosis and related disorders
|December 4, 2025
概括
数字工具在支持多发性硬化症 (MS) 患者的非正式照顾者方面表现有前途. 这些干预措施可以改善生活质量,减少情绪负担,尽管需要更多的研究.
科学领域:
- 神经科学是一个神经科学.
- 数字健康数字健康
- 心理学 心理学 心理学
背景情况:
- 多发性硬化症 (MS) 患者的非正式照顾者 (IC) 面临着重大挑战,包括负担和情绪困扰.
- 越来越多地探索数字干预措施,以支持这些护理人员的心理社会福祉.
研究的目的:
- 系统地审查旨在增强多发性硬化症患者非正式照顾者的心理社会福祉和资源的数字工具.
- 分析干预特征,护理人员和多发性硬化患者的因素,以及效果和可行性等结果.
主要方法:
- 在四个数据库 (2000年1月 - 2024年5月) 进行了系统的文献搜索.
- 混合方法评估工具 (MMAT) 评估了研究质量.
- 结果通过叙事文本和结构化表格进行了合成.
主要成果:
- 八项研究符合纳入标准,其中一半是随机对照试验 (RCT).
- 干预措施主要针对IC,旨在改善生活质量和减少情绪负担.
- 基于网络的平台,移动健康和远程咨询等数字模式在改善心理和绩效指标方面表现出有效性.
结论:
- 数字干预为MS患者的IC提供灵活和可访问的解决方案.
- 研究的数量有限和异质性需要进一步的研究来确认有效性和优化策略.
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