息护理中的护理负担:探索性混合方法研究
Mei Ling Look1, Peh Yi Tan2, Kavin Raj Purushottaman3
1Department of Internal Medicine, Hospital Sultanah Aminah, Johor Bahru, Johor, Malaysia entitylml@yahoo.com.
BMJ supportive & palliative care
|December 4, 2025
概括
非正式的家庭照顾者面临着巨大的负担,但支持系统和应对策略等保护因素可以帮助. 专注于培训和资源的干预措施可以减少息护理的负担.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 护理人员支持护理人员支持
- 健康心理学 心理健康心理学
背景情况:
- 非正式的家庭护理人员在临终性疾病的息护理中至关重要.
- 关于东南亚,特别是马来西亚的护理人员负担的研究是有限的.
- 了解护理人员的经历对于有效的支持至关重要.
研究的目的:
- 为了检查马来西亚一家三级医院的护理经验.
- 确定有助于减轻护理人员负担的因素.
- 探索非正式家庭护理人员在息护理中的生活经验.
主要方法:
- 具有质量主导性的混合方法研究,具有解释性的顺序设计.
- 针对16名非正式家庭照顾者的有目的抽样.
- 使用Zarit负担采访 (ZBI-12) 和半结构化采访,并进行主题分析.
主要成果:
- 护理人员负担从低到高 (50%低,31%中等,19%高).
- 关键因素包括对个人生活的影响,情绪紧张,身体挑战和财务负担.
- 保护因素包括应对策略,支持系统,培训,资源和精神应对.
结论:
- 非正式的护理人员在息护理中面临着各种因素带来的巨大负担.
- 保护因素显著减轻了照顾者的负面影响.
- 干预措施应侧重于加强护理人员培训,心理社会支持和资源可访问性.
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