一项定性采访研究,探讨了成年人,青少年和患有慢性诱导性感冒疹的儿童的生活经历
Ashna Alladin1, Isabelle Guillemin2, Chien-Chia Chuang3
1IQVIA Patient Centered Solutions, Munich, Germany.
Journal of patient-reported outcomes
|December 6, 2025
概括
慢性诱导性感冒疹 (ColdU) 显著影响生活质量,疹和是最烦人的症状. 这项研究捕捉了患者的经验,以开发一个概念模型,以便更好地理解和管理ColdU.
科学领域:
- 皮肤病学 皮肤病学
- 过敏学 过敏学
- 免疫学 免疫学 免疫学
背景情况:
- 慢性诱导性感冒疹 (ColdU) 引起的疹和胀,由冷暴露引发.
- ColdU严重降低了患者与健康相关的生活质量 (HRQoL).
- 有限的定性研究存在于患者报告的ColdU负担.
研究的目的:
- 探索患者对ColdU的体验,识别关键迹象,症状和影响.
- 从患者的角度直接开发ColdU的第一个概念模型.
- 了解不同年龄组的ColdU生活经验.
主要方法:
- 与ColdU患者 (成年人,青少年和儿科护理人员) 进行了一对一的电话概念诱导 (CE) 访谈.
- 利用开放式问题收集有关疾病症状,影响和麻烦方面的详细信息.
- 面试时间:2022-2023 年.
主要成果:
- 在成人/青少年参与者中确定了22种症状/迹象和32种影响;在儿科参与者中确定了17种症状/迹象和19种影响.
- 疹和是所有年龄组中最常见的烦症状.
- 参与者报告说,日常活动,如爱好和穿合适的服装显著受损.
结论:
- 这项研究提供了第一个直接患者报告的洞察力ColdU经验.
- 和被证实是ColdU的核心症状.
- ColdU是一种使人衰弱的疾病,对所有年龄段的患者的HRQoL产生重大负面影响.
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