患者可以接受哪些干预措施来管理长期条件下的疲劳? : 一个定性证据综合
Andrew Booth1, Gill Rooney1, Anthea Sutton1
1Sheffield Centre for Health and Related Research (SCHARR), University of Sheffield, Sheffield, UK.
Disability and rehabilitation
|December 8, 2025
概括
患者对疲劳干预的经验揭示了跨疾病的共同需求. 提供明确解释和灵活性的定制方法对于有效管理复杂疲劳至关重要.
科学领域:
- 医学和健康科学医学和健康科学
- 患者体验研究 研究研究
- 定性证据综合 定性证据综合
背景情况:
- 疲劳是众多长期健康状况中普遍存在和使人衰弱的症状.
- 了解患者对疲劳干预措施的看法对于提高治疗效率和治疗坚持至关重要.
- 现有的研究往往侧重于干预的有效性,不太重视患者的体验.
研究的目的:
- 综合有关患者经验的定性证据,对患有各种长期疾病的成年人进行疲劳干预.
- 为了补充现有的系统审查和对疲劳干预措施有效性的元分析.
- 确定共同的主题和影响患者参与疲劳管理策略的因素.
主要方法:
- 在多个数据库 (MEDLINE,Embase,CINAHL,PsycINFO,Web of Science,Scopus) 中进行了全面的文献搜索.
- 在数据分析中采用了感应性主题分析,随后使用人工智能生成的摘要 (第 3.7 条) 进行演性编码,经过专家审查员的验证.
- 40篇论文,代表35项研究,被纳入了综合.
主要成果:
- 六个跨诊断主题出现了:一致性/理解,变化过程,个性化/适用性,参与障碍,社会支持和交付格式.
- 个人化和调整干预措施被认为是各种条件和干预类型中必不可少的.
- 患者的经验强调了条件内差异的意义,与条件之间的变化相比较.
结论:
- 跨诊断方法揭示了患者对疲劳干预的共同需求,适用于各种长期疾病.
- 有效的干预措施应该提供连贯的解释,灵活地平衡结构,并解决患者的知识和期望,而不会增加负担.
- 未来的疲劳管理策略应该整合跨诊断的见解和个性化,以有效地解决疲劳的复杂性.
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