食物蛋白诱导肠球炎综合征:患者和家属的疾病负担
Bianca N Patel1, Jonathan S Tam2
1From the Department of Pediatrics, Los Angeles General Medical Center and University of Southern California, Los Angeles, California and.
Journal of food allergy
|December 8, 2025
概括
食物蛋白诱发性肠球炎综合征 (FPIES) 显著影响患者和家人的生活质量,导致营养问题和食困难. 管理需要一个多学科的方法来解决FPIES复杂性的全方位.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 过敏 免疫学 免疫学
背景情况:
- 食物蛋白诱导肠球炎综合征 (FPIES) 提出了超出急性反应的挑战.
- 在FPIES管理中避免食用食物可能会给患者和家人带来重大负担.
- 由于FPIES的长期影响,因此需要全面了解其复杂性.
研究的目的:
- 审查FPIES的流行病学.
- 讨论与FPIES相关的并发症,包括营养缺乏,食物厌恶,财务负担和生活质量影响.
- 突出了对FPIES管理的整体方法的需要.
主要方法:
- 使用大学医学图书馆服务的文献综述.
- 仅包括同行评审的来源.
主要成果:
- FPIES的发病率在0.0041%到0.7%之间.
- 与IgE介导过敏的儿童相比,患有FPIES的儿童的照顾者报告生活质量较差,食困难增加.
- 多种食物触发因素与发展食物厌恶的可能性更高相关.
结论:
- FPIES对生活质量产生负面影响,并增加了患者和家人的心理社会负担.
- 综合FPIES管理应整合营养,语言治疗,职业治疗和心理健康服务.
- 需要进一步研究FPIES的财务负担和长期增长/营养影响.
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