学校所设施与希尔施普朗格病儿童的看法:父母的观点
A C Ter Schure1,2,3, S P van Streun4,5,6, C M C de Beaufort4,5,6
1Department of Pediatric SurgeryAmsterdam Pediatric Abdominal Center, Emma Children's HospitalAmsterdam University Medical Centers, Meibergdreef 9, Amsterdam, 1105 AZ, The Netherlands. a.c.terschure@amsterdamumc.nl.
Pediatric surgery international
|December 8, 2025
概括
许多患有赫施普朗格病 (HD) 的孩子避免使用学校所进行排便. 改善学校的所设施和政策可以提高他们的福祉.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 儿童健康 儿童健康
- 医学社会学 医学社会学
背景情况:
- 获得足够的所设施对于患有赫施普朗格病 (HD) 的儿童至关重要.
- 父母对学校所环境的看法对于理解孩子的经历至关重要.
- 赫施普朗格病给受影响的儿童在公共场合带来了独特的挑战.
研究的目的:
- 评估家长对学校卫生间设施的看法,以帮助患有赫施普朗格病的儿童.
- 确定影响儿童使用学校所的因素.
- 了解学校环境对患有HD的儿童的影响.
主要方法:
- 对4至13岁的患有HD儿童的家长进行了横截面调查.
- 问卷包括关于使用所频率和体验的定量和定性问题.
- 数据分析涉及统计和主题方法.
主要成果:
- 超过一半的HD儿童使用学校所进行排尿和排便;少数人避免使用学校所.
- 积极的体验与自我清洁的机会有关;负面的体验与缺乏特定的所规则有关.
- 影响经验的关键主题包括援助,设施,学校规则以及HD的医学性质.
结论:
- 在学校环境中,在患有HD的儿童中,避开所排便是普遍存在的.
- 建议对学校的所设施进行改进,提供个性化的支持,并制定定制的政策.
- 改善学校的所环境可以对患有HD的儿童的福祉产生积极影响.
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