经历失言症的家庭成员的沟通信息需求:一种定性现象学探索
Şevket Özdemir1, Marian C Brady2, Myzoon Ali2
1Department of Speech and Language Therapy, Faculty of Health Sciences, Muğla Sıtkı Koçman University, Muğla, Türkiye.
Disability and rehabilitation
|December 9, 2025
概括
在土耳其,阿法西亚 (PwA) 患者的家庭成员面临着未得到满足的信息需求,并且在很大程度上独立地导航医疗保健系统. 改善支持和信息提供对于有效的失言症康复至关重要.
科学领域:
- 神经学 神经学
- 语音和语言治疗治疗
- 医疗保健管理的管理
背景情况:
- 失言症显著影响家庭成员 (FMs),通常是由于信息延迟或不足.
- FMs在调整和管理失语后果方面发挥着至关重要的作用.
研究的目的:
- 探索土耳其阿法西亚 (PwA) 患者的 FM 经验.
- 调查他们对医疗保健系统的导航,信息提供和与Pwa的沟通.
主要方法:
- 在线半结构面试与12个FM进行.
- 数据使用反射主题分析来分析.
主要成果:
- 出现了四个主要主题:沟通变化,信息/培训需求,医疗保健服务获取和康复角色.
- FMs报告说,信息需求未得到满足,他们对康复的潜在贡献缺乏认可.
- FMs主要依靠自己的资源来管理失语的旅程.
结论:
- 土耳其的医疗保健专业人员必须解决FMS的失语信息需求.
- 服务提供模式应该超越医疗和基于损伤的方法.
- 综合生活参与方法对口呆症的原则建议用于评估和治疗.
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