共同导航护理:制定一个协作清单,以改善对智力障碍儿童的护理
Hayley Linda Trower1, Chris Oliver2, Leah E Bull3
1Warwick Medical School, University of Warwick, Coventry, UK. Hayley.trower@warwick.ac.uk.
Research involvement and engagement
|December 10, 2025
概括
患者与公众参与 (PPI) 被用来开发"行为检查表",这是一个用于识别和监测智力障碍儿童具有挑战性的行为工具. 这种协作方法确保了检查清单对于家长,照顾者和临床医生来说是实用的.
科学领域:
- 智力障碍研究 智力障碍研究
- 患者和公众参与研究 (PPI)
- 行为科学 行为科学
背景情况:
- 患者和公众参与 (PPI) 在研究中至关重要,但在智力障碍 (ID) 背景下经常被忽视.
- 在ID研究中PPI的障碍需要解决,以确保包容性.
- 这项研究的重点是开发一种工具,以支持识别和监测中度到严重的ID儿童的挑战性行为.
研究的目的:
- 与家长/护理人员和临床医生合作开发"行为检查表".
- 创建一个易于使用的工具,用于识别和监测中度至严重智力障碍儿童具有挑战性的行为原因.
- 确保检查清单对服务用户和服务提供商来说都是实用和相关的.
主要方法:
- 利用了咨询,协作和用户控制的研究原则.
- 成立了一个检查清单开发小组,由家长/照顾者,临床医生和研究人员组成.
- 纳入重点小组的反,并遵循GRIPP2-SF报告框架.
主要成果:
- PPI显著改进了检查清单的目的,功能,清晰度和视觉设计.
- 检查清单项目和指导说明进行了修订,以更好地与现实世界保持一致,并使普通人更容易理解.
- 检查清单被认为是识别模式,架构对话,监控变化和支持临床决策的辅助回忆录.
结论:
- 与家长/照顾者和临床医生合作开发的结果是一个科学有效和实际相关的工具.
- PPI加强了利益相关者关系和合作潜力.
- 行为检查清单已经准备好进行试点测试,并有可能改善ID儿童及其家属的结果.
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