在囊性纤维化中改变护理模式:一篇评论
Barry Lawrence Diener1, Maria Berdella2, Joan DeCelie-Germana3
1Division of Pediatric Pulmonary, Stony Brook Children's Hospital, Renaissance School of Medicine, Stony Brook University, Stony Brook, NY 11794, USA.
Healthcare (Basel, Switzerland)
|December 11, 2025
概括
囊性纤维化 (CF) 护理因人口变化和新疗法如CFTR调节器而发生了变化. 多学科CF团队模式已经发展到满足不断变化的患者需求,包括远程医疗和共享决策.
科学领域:
- 肺部病理学 肺部病理学
- 遗传学 是一个遗传学.
- 医疗保健管理的管理
背景情况:
- 囊性纤维化 (CF) 是一种慢性多系统性疾病,需要广泛的多学科护理.
- 历史上被视为儿科疾病,CF现在显著影响成年人,患者中位数年龄上升.
- 随着患者人口结构的变化和医学进步,需要改变CF护理的提供.
研究的目的:
- 审查美国囊性纤维化护理的转变.
- 突出推动CF护理模式和团队结构变化的关键因素.
- 检查适应人口变化和治疗突破的适应情况.
主要方法:
- 这是一个以美国经验为重点的叙事评论.
- 对囊性纤维化患者的人口趋势的分析.
- 检查CFTR调节器疗法和COVID-19大流行对护理的影响.
主要成果:
- 纤维肌瘤治疗已经从儿科转向了儿科和成人联合治疗模式.
- CFTR调节器疗法,远程医疗和远程监控正在重塑医疗保健.
- 显而易见的是,患者和家人的参与度增加,包括共享决策和联合制作.
结论:
- 囊性纤维化护理模式和团队结构已经显著发展.
- 适应包括纳入新技术和以患者为中心的方法.
- 未来的CF护理可能会继续整合这些进步,以满足老龄化患者群体的需求.
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