[参与患者合作伙伴:法语瑞士的平台和战略]
Hélène Chanvrier1, Alfredo Addeo2, Cindy Allenbach3
1PhD, Chargée de projet, Institut universitaire de formation et de recherche en soins, FBM, UNIL et CHUV, 1010 Lausanne.
Revue medicale suisse
|December 11, 2025
概括
确定患者合作伙伴 (PP) 对于涉及患者和公众参与和参与 (PPIE) 的研究至关重要. 六个关键维度有助于理解PP,使他们的技能与有效合作的研究需求保持一致.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与和参与 (PPIE)
背景情况:
- 将患者合作伙伴纳入研究是必不可少的,但具有挑战性.
- 法语瑞士现有的PPIE平台采用了不同的参与策略.
研究的目的:
- 识别和组织关键维度,以了解患者的合作伙伴.
- 为了促进研究需求和患者合作伙伴贡献之间的更好的协调.
主要方法:
- 分析PPIE小组用来描述患者合作伙伴的信息.
- 将患者合作伙伴数据分类为常见维度.
主要成果:
- 确定了了解患者合作伙伴的六个核心维度:社会人口统计数据,研究/PPIE经验,疾病知识,横向技能,伙伴关系期望和约束/可用性.
- 这些维度为表征潜在的患者合作伙伴提供了一个框架.
结论:
- 使用六个维度的结构化方法可以增强合适的患者合作伙伴的识别和选择.
- 该框架通过将动机和技能与项目要求相匹配,支持患者合作伙伴有效地融入研究项目.
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