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儿童口服免疫疗法决策中的患者和家庭经验和支持需求:日本的一项多利益相关者定性研究
Junko Hayama1, Kanako Yamamoto2, Kota Hirai3
1Faculty of Nursing, School of Medicine, Tokai University, Isehara, Japan.
Journal of patient experience
|December 11, 2025
概括
儿科食物过敏的口服免疫疗法 (OIT) 需要文化敏感的支持. 这项研究发现,共享决策 (SDM) 必须优先考虑儿童的声音,并满足家庭对有效OIT治疗的需求.
科学领域:
- 儿科过敏和免疫学
- 医疗保健服务研究 医疗服务研究
- 决策科学 决策科学 决策科学
背景情况:
- 口服免疫疗法 (OIT) 是对儿科食物过敏的日益增长的治疗方法.
- 在日本,OIT的决策支持策略是不发达的,在文化上是特定的.
研究的目的:
- 探索有关日本OIT的儿童,家长和医疗保健专业人员的决策经验和支持需求.
- 在日本文化背景下,确定影响OIT决策的因素.
主要方法:
- 质量描述性研究涉及14名参与者 (儿童,家长,医疗保健专业人员) 来自两个三级医疗中心.
- 进行了个别的半结构面试,并进行了主题分析.
- 太华决策支持框架适应了日本的文化背景.
主要成果:
- 三个核心主题出现了:平衡安全,负担和价值观;把孩子的声音 (参与,情感,自主) 放在中心;弥合信息,情感和同行支持的差距.
- 一个概念模型说明了利益相关者的特定需求如何相互作用来塑造决策质量.
- 该研究强调了儿科自主,临床不确定性和社会文化背景在OIT决策中的交叉关系.
结论:
- 对于儿科OIT,需要具有文化敏感性和儿童包容性的共享决策 (SDM) 策略.
- 定制的决策辅助工具对于支持家庭在日本导航OIT决策至关重要.
- 解决信息,情感和同行支持差距对于有效实施OIT至关重要.
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