解决和支持瘤幸存者的未满足需求:一个定性研究
Lena Fauske1, Øyvind Bruland1,2, Ivar Hompland1
1Department of Oncology, Norwegian Radium Hospital, Oslo University Hospital, Oslo, Norway.
International journal of qualitative studies on health and well-being
|December 11, 2025
概括
瘤幸存者希望在随访护理期间全面沟通和持续了解晚期影响的信息. 医疗保健专业人员应该促进开放的对话和长期健康管理的共同责任.
科学领域:
- 在瘤学瘤学.
- 患者体验 患者体验
- 定性研究是指质量研究.
背景情况:
- 对瘤幸存者的长期随访护理至关重要.
- 有效的沟通会影响患者的福祉和生活质量.
研究的目的:
- 探索瘤幸存者在长期门诊随访期间的医疗保健沟通和支持方面的经验.
- 确定患者与医疗服务提供者的互动中需要改进的领域.
主要方法:
- 探索性的定性设计,利用现象学和解释学方法.
- 与28名肉瘤患者进行了半结构面试.
- 对采访数据应用的主题分析.
主要成果:
- 幸存者报告了对医疗保健专业人员的高度信任和对瘤治疗的满意度.
- 他们表示需要更全面的医生观点,承认癌症对生活质量的影响.
- 参与者重视结构化检查清单以确定需求,并希望获得有关副作用和晚期并发症的更全面信息.
结论:
- 肉瘤幸存者优先考虑明确,一致和整体的沟通,关于后续护理中的晚期影响.
- 加强以患者为中心的沟通需要开放的对话和澄清长期健康和康复的共同责任.
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