"耻辱",生存和代际文化影响:拉美自闭症贡献通过社区参与的研究
Amber M Angell1, Daníella C Floríndez2, Marshae D Franklin1
1University of Southern California, Los Angeles, USA.
OTJR : occupation, participation and health
|December 12, 2025
概括
西班牙裔/拉丁裔家庭在女孩的自闭症鉴定中遇到了延迟. 像"生存解释了耻辱感"和"代际影响"这样的文化因素影响了诊断和安全,突出了对文化敏感自闭症服务的需求.
科学领域:
- 神经发育障碍 神经发育障碍
- 文化精神病学是一种精神病学.
- 社区参与的研究
背景情况:
- 与男孩相比,自闭症女孩在自闭症识别方面经常面临差异.
- 社区参与的研究对于理解各种自闭症经历至关重要.
- 西班牙裔/拉丁裔文化背景可能会影响自闭症诊断和支持.
研究的目的:
- 探索自闭症女孩家庭的经历,专注于识别差异.
- 研究西班牙裔/拉丁裔社区文化因素对自闭症诊断的影响.
- 突出自闭症生活经验合作者 (ALEC) 在研究中的作用.
主要方法:
- 一项多方法研究,涉及21名护理人员的采访和调查.
- 从最初的队列中对10名西班牙裔/拉丁裔护理人员进行了深入采访.
- 结合描述性统计和叙述性专题方法的分析,包括会议记录.
主要成果:
- 来自西班牙语家庭的女孩在较晚的年龄被识别为自闭症.
- 确定了定性主题:"生存解释了耻辱感"和"代际影响"对像口罩这样的安全行为.
- 自闭症生活经验合作者 (ALEC) 显著影响了研究结果的解释.
结论:
- 社区的参与,特别是ALEC的参与,增强了自闭症研究的复杂性和文化细微差别.
- 西班牙裔/拉丁裔社区的文化因素为自闭症识别带来了独特的挑战和考虑.
- 解决差异需要对自闭症诊断和支持自闭症女孩的文化响应方法.
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