澳大利亚面向患者的胰腺胆癌在线资源的审查,评估和内容映射研究
Katia Ferrar1,2, Chris Baggoley3,4, Lisa Beatty5
1College of Medicine and Public Health, Flinders Health and Medical Research Institute, Flinders University, Adelaide, South Australia, Australia. katia.ferrar@flinders.edu.au.
概括
澳大利亚为胰腺胆癌幸存者的在线资源需要改进. 许多人缺乏多样性和幸存者的声音,在康复和性等关键信息领域存在差距. 推一个共同设计的资源中心.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 医疗保健服务研究 医疗服务研究
背景情况:
- 支持性护理对于癌症幸存者的结果至关重要.
- 在线资源是支持性护理的关键接入点.
- 胰腺胆道癌症为幸存者带来了独特的挑战.
研究的目的:
- 识别和评估澳大利亚在线支持性护理资源,用于胰腺胆癌幸存者.
- 根据已识别的信息需求,对这些资源进行内容映射.
- 评估现有在线支持的质量和可访问性.
主要方法:
- 澳大利亚癌症组织的结构化在线搜索.
- 评估标准包括成本,可读性,多样性和消费者的声音.
- 根据信息需求的类别进行内容映射.
主要成果:
- 发现了180个在线资源和7个服务网页.
- 大多数资源 (99%) 是免费的; 44% 是8年级的可读性.
- 在身体形象,性和康复等领域发现了显著的差距;只有24%的人表现出多样性,24%的人包括幸存者的声音.
结论:
- 对于胰腺胆道癌幸存者的现有在线资源需要改进.
- 需要一个共同设计的在线资源中心来集中可访问的,适当的支持.
- 提高资源质量和减少信息搜索负担对于幸存者的结果至关重要.
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