对北卡罗来纳州关键先天性心脏缺陷病例确定数据源的评估
Helen Atkinson1, Kristin Bergman1, Nina Forestieri1
1Birth Defects Monitoring Program, State Center for Health Statistics, Division of Public Health, NC Department of Health and Human Services, Raleigh, North Carolina, USA.
Birth defects research
|December 12, 2025
概括
脉冲氧计 (POX) 查为识别关键先天性心脏缺陷 (CCHD) 提供了中度的灵敏度. 医院出院记录为CCHD监测提供了最高的灵敏度,优化了公共卫生资源.
科学领域:
- 公共卫生 公共卫生
- 心脏病学 心脏病学
- 医疗信息学 医疗信息学
背景情况:
- 对严重先天性心脏缺陷 (CCHD) 的监测对研究和公共卫生至关重要.
- 实施通用脉冲氧计 (POX) 查可能会提高CCHD监测数据的完整性.
- 本研究评估了多个数据源,包括POX记录,用于CCHD病例识别.
研究的目的:
- 评估各种数据源的敏感性,以确定严重先天性心脏缺陷 (CCHD) 病例.
- 为了确定脉冲氧计 (POX) 记录在CCHD监测中的附加值.
- 为公共卫生监测策略提供信息,以优化病例确定.
主要方法:
- 利用了由北卡罗来纳州出生缺陷监测计划 (2018-2021) 确认的1035例CCHD病例的队列.
- 对于出生,婴儿死亡和胎儿死亡证明,医院出院记录和POX记录的计算灵敏度.
- 根据人口和临床病例特征分层分层的敏感度值.
主要成果:
- 根据数据来源,敏感性差异很大:出院记录 (89.9%),婴儿死亡证明 (73.0%),POX记录 (59.5%),胎儿死亡证明 (29.8%) 和出生证明 (6.7%).
- POX记录显示中度敏感性,缺失的记录影响了它们的实用性.
- 对于在大型医院分娩的病例,分娩后转移的病例,入院于NICU或产前诊断的病例,观察到更高的敏感性.
结论:
- 脉冲氧计 (POX) 记录对心脏病发病例的发现具有中度的敏感性,通过改进报告可能增加效用.
- 医院出院记录显示,对CCHD监测的敏感度最高.
- 监控计划应考虑补充数据来源,以优化CCHD人员的时间和资源,以确定病例.
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