在最初的1000天里,没有我们就没有关于我们的任何东西:开发包容的早期支持残疾家庭
Angharad E Beckett1, Neve McLean2, Anna Miller1
1School of Sociology and Social Policy, University of Leeds, Leeds, UK.
Sociology of health & illness
|December 14, 2025
概括
残疾家庭共同设计了一项早期计划,突出了能力主义如何创造障碍. 他们的解决方案促进了基本的转型,以获得公平的健康和社会护理支持.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 社会护理政策 社会护理政策
- 关于残疾人的研究.
背景情况:
- 现有的早期健康和社会护理计划往往对残疾家庭有局限性.
- 确保从计划开始就包括残疾人,对于提高护理人员和婴儿福祉至关重要.
研究的目的:
- 与残疾家庭共同设计一个普遍的早期计划.
- 识别和解决卫生和社会护理服务中的排斥性做法.
- 为包容性家庭支持制定实际设计原则.
主要方法:
- 与11个残疾家庭进行了密集的共同设计研讨会.
- 雇佣了障碍物映射和解决方案生成活动.
- 利用专题分析来确定排斥和包容的关键领域.
主要成果:
- 共同设计人员确定了排斥性做法的四个关键领域:物理可访问性,程序灵活性,内容包容性和专业实践.
- 机构能力主义表现为难以进入的场所,严格的政策和对父母专业知识的忽视.
- 建议的解决方案包括可访问的场地,灵活的出席率,基于力量的内容和经过验证的家长专业知识.
结论:
- 有意义的包容需要拆除排斥性系统,而不是改装它们.
- 共同设计者的见解提供了对制度能力主义的批评和包容性服务的实际原则.
- 参与式方法可以通过创造替代可能性来促进公平的家庭支持.
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