从童年到成年时代的杜恩肌肉衰竭的多学科管理

Juliette Ropars1, Emmanuelle Salort-Campana2

  • 1Department of Pediatrics, CHU Brest, 29200 Brest, France; Neuromuscular center, 29200 Brest, France; Laboratoire du Traitement de l'Information Médicale, LaTIM INSERM UMR1101, 29200 Brest, France.

概括

管理杜恩肌肉发育不良症 (DMD) 需要终身,多学科的方法. 在整个童年,过渡期和成年期进行量身定制的护理,可以优化患有这种渐进性神经肌肉疾病的个体的生活质量和结果.

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