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Updated: Jan 8, 2026

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患者的研究重点和参与原发性纤毛功能障碍的研究

Yin Ting Lam1,2, Laura Behan3, Katie Dexter4

  • 1Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.

BMJ open respiratory research
|December 15, 2025
PubMed
概括

患有原发性纤维动力障碍 (PCD) 的患者希望在获得信息时参与研究. 他们的优先事项包括寻找治愈方法,并为这种罕见疾病开发更好的治疗方法.

关键词:
患者结果评估评估.罕见的肺部疾病是一种罕见的肺部疾病.调查和问卷调查和问卷调查系统性疾病和肺部疾病

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