在8岁以下的口唇裂和/或口腔裂中,代理和患者报告的结果措施:一个范围审查
Kariym Joachim1,2, Alexandra D'Souza2, Jessie Howard2,3
1Institute of Medical Science, University of Toronto, Temerty Faculty of Medicine, University of Toronto, Toronto, Canada.
概括
这次审查发现,对于患有口唇裂 (CL/P) 的幼儿,很少有具体的结果指标. 需要更多的研究来开发和验证患者报告结果 (PRO) 和代理报告结果 (ProxRO) 工具.
科学领域:
- 儿科健康研究成果研究成果
- 裂口唇护理 裂口唇护理
- 测量科学 测量科学 测量科学
背景情况:
- 患者报告结果 (PROs) 和代理报告结果 (ProxROs) 对于评估护理有效性至关重要,特别是当儿童无法自我报告时.
- 在患有裂唇和/或 palatal (CL/P) 的儿童中,使用代理与自我报告测量方法的适当年龄仍未得到充分研究.
- 现有的文献缺乏对年轻的CL/P患者可用的PROs和ProxROs的全面概述.
研究的目的:
- 确定现有的PRO和ProxRO措施,用于8岁以下的CL/P儿童.
- 为了确定在这个儿科群体中应用代理或自我报告措施的年龄.
- 为了突出目前对年轻的CL/P患者的结果测量的差距.
主要方法:
- 使用主要数据库 (Ovid MEDLINE,EMBASE,PsycINFO,Cochrane,Web of Science) 进行了范围审查,截至2024年7月.
- 研究被选,数据由重复审查者独立提取.
- 识别的措施被分类为PRO,ProxRO或MultiRO,并对发现进行叙事综合.
主要成果:
- 在7001个识别的出版物中,57个研究符合纳入标准,产生56个不同的措施.
- 大多数已识别的措施 (43/56) 已公布了心理测量属性,但很少有特定于CL/P的.
- 代理报告结果 (ProxRO) 措施比PRO更常见;父母代理从出生到8岁时被使用,而自我报告始于3岁.
结论:
- 显著缺乏特定条件的ProxRO措施来评估8岁以下儿童的裂护理结果.
- 迫切需要为CL/P人群开发和验证专门的ProxRO工具.
- 目前的测量实践突出了儿童裂护理中需要适合年龄和特定条件的结果评估的需要.
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