医疗保健系统的分裂:通过患者的眼睛面临的挑战
Dunia Ghannam1, Nathalie Angelé-Halgand2, Michèle Kosremelli-Asmar3
1Lebanese University, Beirut, Lebanon.
International journal of qualitative studies on health and well-being
|December 16, 2025
概括
分裂的医疗保健系统给残疾儿童的家庭带来了巨大的财政和官僚负担. 父母经常成为专家患者,因系统故障而管理复杂的护理路径.
科学领域:
- 医疗保健系统分析 医疗保健系统分析
- 患者为中心的护理研究研究
- 关于残疾人的研究.
背景情况:
- 分散的医疗保健系统给患者和家人带来了多方面的挑战.
- 碎片化对护理人类要素的影响是一个关键问题.
- 患有残疾儿童的父母往往需要通过复杂且不连接的医疗保健途径.
研究的目的:
- 从患者的角度确定分散的医疗保健系统中的关键挑战.
- 分析医疗保健碎片化如何影响医疗保健提供者的感知人性.
- 了解这些系统中残疾儿童父母的经历.
主要方法:
- 涉及29个黎巴嫩残疾儿童家庭的定性研究.
- 通过半结构面试收集数据.
- 使用NVivo 11进行内容分析,采用吸收方法.
主要成果:
- 确定金融和官僚负担是主要的挑战.
- 揭示了碎片化系统固有的物质化和关系困难.
- 父母扮演"专家患者"和"护理路径经理"的角色,以应对系统故障.
结论:
- 分散的医疗保健系统给孩子们带来了巨大的负担,加剧了父母的痛苦.
- 从患者的角度来看,解决碎片化问题对于改善护理至关重要.
- 医疗保健中的系统性失败导致家庭长期的情绪和心理痛苦.
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