一个活着的道德项目,以解决慢性疾病中的心理痛苦:过程和结果
Bénédicte D'Anjou1, Katherine Desjardins2, Julie Ianniruberto2
1Pragmatic Health Ethics Research Unit, Institut de recherches cliniques de Montréal, Montréal, Québec, Canada.
概括
患有慢性疾病的患者经常经历心理困扰,医疗保健提供者 (HCP) 需要更好的工具来解决它. 一个活着的伦理项目共同开发的干预措施,改善患者护理和心理健康支持.
科学领域:
- 医学伦理 医学伦理
- 以患者为中心的护理
- 健康心理学 心理健康心理学
背景情况:
- 患有复杂或罕见慢性疾病的个人面临着严重的心理痛苦.
- 医疗保健提供者 (HCP) 往往没有能力处理患者疾病的情感和社会层面.
研究的目的:
- 为了解决慢性病患者被忽视的心理痛苦.
- 共同开发和评估改善医疗机构内心理健康支持的干预措施.
主要方法:
- 一个活着的伦理项目,结构为一个五阶段的活着的实验室.
- 使用半结构面试和小组面试来识别问题,构思和评估.
- 采用一种参与式的方法,将利益相关者直接参与到研究过程中.
主要成果:
- 确定心理痛苦作为一个关键的伦理问题.
- 共同开发电子预约准备表,为员工提供心理健康资源目录和宣传海报.
- 所有干预措施都得到了积极的评价,除了参与式研究方法.
结论:
- 直接让利益相关者参与伦理研究可以产生切实的,积极的结果.
- 共同解决重大道德问题可能会带来意想不到的临床益处.
- 即使资源和时间有限,也可以制定有效的干预措施.
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