解锁洞察力:通用实践工作人员关于分享研究通用实践数据的观点 - 范围审查
Heidi Green1, Belinda Fabrianesi2, Lucy Carolan2
1Australian Centre for Health Engagement, Evidence and Values, School of Social Science, University of Wollongong, Wollongong, New South Wales, Australia. hgreen@uow.edu.au.
BMC primary care
|December 17, 2025
概括
一般实践人员支持共享用于研究的数据,只要有隐私和道德保障. 未来的努力必须确保包容性,特别是对弱势群体,以实现公平的数据共享.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 数据治理数据治理
- 主要护理是指初级护理.
背景情况:
- 一般实践数据对研究,政策和了解医疗保健提供有价值.
- 在一般实践中,数据共享的伦理和实际挑战需要进一步调查.
- 本综述探讨了一般实践人员关于研究数据共享的观点.
研究的目的:
- 调查一般实践工作人员对共享研究一般实践数据的看法.
- 确定在初级保健机构共享数据的障碍和促进者.
主要方法:
- 根据JBI方法和PRISMA-ScR指南进行范围审查.
- 搜索了MEDLINE,Scopus,PsycINFO和灰色文学. 这是一个很大的问题.
- 包括来自澳大利亚和英国的9项研究,通过叙事综合分析.
主要成果:
- 工作人员通常支持为公众利益和改善医疗保健的数据共享.
- 支持取决于强有力的隐私,道德治理和实际援助.
- 担忧包括患者隐私,商业化,信任,同意模型和工作负载;同意观点分歧.
- 没有研究涉及弱势群体的观点.
结论:
- 一般实践人员愿意在存在道德和实际保障的情况下共享数据.
- 未来的举措需要透明度,信任和包容性,特别是对于弱势群体.
- 优先考虑这些因素可以确保公平和可持续的数据共享.
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