父母作为发展合作伙伴:为深度智力和多重残疾儿童建立促进发展的环境
Ines Van Keer1, Evy Meys1, Bea Maes1
1University of Leuven, Faculty of Psychology and Educational Sciences, Research Unit Parenting and Special Education, Leopold Vanderkelenstraat 32, box 3765, Leuven 3000, Belgium.
Research in developmental disabilities
|December 18, 2025
概括
患有深刻智力和多重残疾 (PIMD) 的孩子的父母通过刻意的规划和实施,积极创造促进发展的环境. 他们的孩子的进步影响了这个过程,突出了社会支持的需要.
科学领域:
- 儿童发展 儿童发展
- 关于残疾人的研究.
- 家庭支持 家庭支持
背景情况:
- 患有深度智力和多重残疾 (PIMD) 的孩子的父母面临着重大的实际,医疗和行政挑战.
- 了解父母的看法和管理他们作为孩子发展伙伴的角色是有限的.
- 这项研究探讨了父母如何履行他们作为PIMD儿童发展合作伙伴的角色.
研究的目的:
- 为了产生一个有根据的理论,解释PIMD儿童的父母如何履行他们作为发展合作伙伴的角色.
- 了解父母在培养孩子发展时所采用的过程.
- 确定影响父母作为发展伙伴的能力的因素.
主要方法:
- 使用了基于理论的方法.
- 我们采访了9个患有PIMD的孩子 (0-12岁) 的父母.
- 在三轮中实现了代编码和主题和.
主要成果:
- 开发了一个动态发展促进环境 (DPE) 模型.
- 父母通过审议 (选择机会) 和交付 (实施) 持续创建DPE.
- 孩子的发育进度显著影响了这些父母的过程.
结论:
- 父母网络和社会作为次要的发展合作伙伴,但也可能构成障碍.
- 增加社会包容性和共同责任可以提高家庭的生活质量.
- 更大的支持可以让父母有更多的时间,精力和精神空间来发挥他们的发展合作伙伴角色.
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