患者的观点 决策辅助 放射性治疗中等风险甲状腺癌
Alaina L Carr1, Kate L Gabriel2, Gautham Pillai3
1Georgetown University Medical Center, Department of Oncology, Washington, DC, United States. alc343@georgetown.edu.
International journal of behavioral medicine
|December 18, 2025
概括
患者需要清楚地了解甲状腺癌放射性 (RAI) 治疗的信息. 患者决策辅助 (PtDA) 应涵盖RAI风险,益处和成本,以支持知情选择.
科学领域:
- 在瘤学瘤学.
- 患者的决策制定 患者的决策
- 医疗信息学 医疗信息学
背景情况:
- 甲状腺癌中级风险患者在甲状腺切除术后面临有关放射性 (RAI) 治疗的复杂决定.
- 围绕RAI风险和益处的不确定性使这组患者的治疗选择变得复杂.
- 这项研究旨在确定患者的决策需求,以开发基于网络的患者决策辅助工具 (PtDA).
研究的目的:
- 确定中等风险甲状腺癌患者提供RAI治疗的特定信息和决策需求.
- 根据这些患者的需要,制定一个针对患者决策辅助工具 (PtDA).
- 加强在甲状腺癌RAI治疗中的共享决策.
主要方法:
- 目的性抽样招募了23名成年甲状腺癌患者,他们从三个医院接受了RAI治疗.
- 在线调查和半结构化的焦点小组探索了患者的经验和决策需求.
- 对焦点小组成绩单的定性内容分析确定了关键主题和建议.
主要成果:
- 患者希望参与决策,基于价值的结果,以及关于RAI的明确信息.
- 发现的关键知识缺口包括RAI剂量,副作用,风险分层和安全预防措施.
- 患者推PtDA的特定内容,包括关于低饮食和财务成本的信息.
结论:
- 患者的见解对于开发针对RAI治疗决策的有针对性的基于Web的PtDA至关重要.
- 一个PtDA应该整合个人价值观,风险信息和后勤因素,以便做出明智的决策.
- 需要进一步的研究来评估PtDAs在中等风险甲状腺癌管理中的有效性.
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