在发作和上学之间:对患有的儿童经历的定性见解
Seda Kılıç1, Atiye Karakul2, Duygu Sönmez Düzkaya2
1Mersin University Hospital, Children's Outpatient Clinics, Mersin, Turkey.
Epilepsy & behavior : E&B
|December 21, 2025
概括
患有的儿童在学校经历了重大的情感,社会和学术挑战. 解决这些问题需要提高意识和社区教育,以减少耻辱和改善福祉.
科学领域:
- 儿科神经学 儿科神经学
- 儿童神经系统疾病 儿童神经系统疾病
- 教育心理学教育心理学
背景情况:
- 是一种常见的儿童慢性神经系统疾病.
- 它显著影响儿童的学业成绩,社会关系和情感福祉.
- 了解学校经历对于支持受影响儿童至关重要.
研究的目的:
- 检查10-18岁儿童的学校经历.
- 在学校环境中识别与有关的挑战和支持系统.
- 为旨在改善儿童福祉的干预提供信息.
主要方法:
- 涉及20名患有的儿童 (10-18岁) 的定性研究.
- 采访是在默辛大学医院儿童神经病学门诊所进行的.
- 数据分析涉及使用MAXQDA 22进行主题编码,确定8个主题和51个代码.
主要成果:
- 儿童报告了情绪上的挑战 (悲伤,恐惧,焦虑) 和日常生活的影响 (功能障碍,活动限制,参与限制).
- 发作症状包括失去意识和头;后发作状态包括恐惧,疲劳和困惑.
- 同龄人关系受到隐症的影响;由于集中力困难和缺勤,学术参与受到影响. 社会支持来自指导顾问和同龄人.
结论:
- 患有的儿童在学校面临着巨大的情感,社会和学术障碍.
- 建议在学校和社区教育,包括社交媒体,开展宣传活动.
- 减少耻辱和加强支持对于这些儿童的福祉至关重要.
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