儿童使用长期非侵入性通风的经验:一种定性研究
Deborah Olmstead1,2, Allison Carroll3,4, Jennifer Klein5
1Respiratory Medicine, Stollery Children's Hospital, Edmonton, AB, Canada.
概括
长期非侵入性通风 (LT-NIV) 提供了好处,但也给儿童和家庭带来了挑战. 儿科专用设备和协作是优化其使用和改善生活质量的关键.
科学领域:
- 儿童呼吸系统护理 儿童呼吸系统护理
- 医学技术 医学技术 医学技术
- 患者的体验 患者的体验
背景情况:
- 长期非侵入性通风 (LT-NIV) 对于治疗儿科呼吸道疾病至关重要.
- 优化LT-NIV使用需要了解用户体验.
- 目前的设备可能无法完全满足儿科用户的需求.
研究的目的:
- 确定优化儿童长期非侵入性通风 (LT-NIV) 使用的因素.
- 探索使用LT-NIV的儿童及其父母/监护人的生活经验.
- 收集改善LT-NIV治疗和设备的见解.
主要方法:
- 对与儿童 (8-12岁) 和父母/监护人进行的焦点小组采访进行定性框架分析.
- 参与者使用LT-NIV至少3个月.
- 编码发现的专题分析.
主要成果:
- 出现了四个主题:LT-NIV的双重性质 (好处/挑战),与众不同的感觉,设备接口问题 (面具,湿度),以及需要用户驱动的改进.
- 孩子和家长强调了情感,社会和身体上的挑战.
- 设备设计和功能对耐受性和附着性的显著影响被注意到.
结论:
- LT-NIV改善生活,但需要承诺;儿童专用设备是必不可少的.
- 医疗保健提供者,儿童和家庭之间的合作对于成功至关重要.
- 未来的研究和技术开发应纳入用户体验,以提高LT-NIV的遵守和结果.
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