儿科麻醉症患者报告结果 (PN-PROs) 的发展
Grace Y Wang1, Jennifer Worhach1, Eric S Zhou1,2
1Department of Neurology, Boston Children's Hospital, Boston, MA, United States.
概括
开发了一种针对儿科麻醉症的新型患者报告结果测量方法,以评估日常生活的影响. 这种儿童麻醉症患者报告结果 (PN-PROs) 测量有助于管理慢性神经系统疾病.
科学领域:
- 神经学 神经学
- 患者报告的研究结果研究结果
背景情况:
- 儿科麻醉症是一种慢性神经系统疾病,影响儿童和青少年.
- 有效的管理需要定期评估症状的频率和严重程度,以优化生活质量.
- 目前,没有患者报告结果 (PROs) 措施专门评估儿科麻醉症对日常生活的影响和疾病负担.
研究的目的:
- 开发一种针对儿科麻醉症的新型患者报告结果 (PROs) 测量方法.
- 创建一个工具,结合患者和专家的意见来评估疾病的影响.
- 建立一个标准化的临床实践和研究措施.
主要方法:
- 进行了一项定性混合方法研究.
- 通过文献审查,专家采访和患者/家长重点小组,开发了一个概念框架.
- 创建了一个PROs项目库,通过专家审查,可读性分析和认知面试来改进和验证.
主要成果:
- 开发了一个PROs项目库,有两个领域:麻醉症症状和功能障碍,包括10个方面.
- 最后的项目库包含55个项目:27个用于麻醉症症状 (行为,触觉障碍,认知困难,睡眠质量,嗜睡) 和28个用于功能障碍 (症状烦/担忧,认知/学术,全球功能,安全,社会).
结论:
- 小儿麻醉症患者报告结果 (PN-PROs) 衡量标准是使用专家见解,文献和患者/家庭经验来开发的.
- 预计PN-PROs措施将为疾病控制提供有价值的纵向评估.
- 该措施旨在在儿科麻醉症临床实践和研究中标准化结果评估.
关键词:
青少年 青少年 青少年 青少年孩子们的孩子们的孩子们的孩子们.麻醉症是一种精神病.患者报告的结果.儿科 儿科 儿科 儿科质量发展是指质量发展.问卷调查问卷 问卷调查问卷睡眠障碍 睡眠障碍是一种睡眠障碍.更多相关视频
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