识别以人为中心的结果措施,用于成人日间服务:E-Delphi共识研究
Clara J Scher1, Keith Anderson2, William Zagorski3
1Weill Cornell Medicine, New York, NY, USA.
Sage open aging
|December 22, 2025
概括
成人日间服务 (ADS) 对阿尔茨海默病和相关痴呆症 (ADRD) 护理至关重要. 这项研究确定了评估治疗ADS的ADRD个体生活质量和福祉的关键结果措施.
科学领域:
- 老年学是指老年学的学科.
- 痴呆症护理研究研究
- 医疗保健服务研究 医疗服务研究
背景情况:
- 成人日间服务 (ADS) 被认为是为患有阿尔茨海默病和相关痴呆症 (ADRD) 的个人提供以人为本的护理.
- 目前在常规测量ADS中以人为中心的结果方面存在局限性,这阻碍了对幸福感的影响的评估.
- 需要有效,可靠和实用的结果措施,与ADRD生活质量领域保持一致.
研究的目的:
- 确定有效,可靠和实用的以个人为中心的结果措施,用于接受ADS的ADRD患者.
- 评估关键领域的潜在措施:意义和目的,参与,社交网络和归属感.
- 为选择用于评估ADS对生活质量影响的仪器提供信息.
主要方法:
- 一个两轮的e-Delphi审查,涉及22名ADS从业者和研究人员.
- 基于易于管理和相关性等特征的10个潜在以人为中心的结果指标的评估.
- 使用66.67%的超级多数门建立共识.
主要成果:
- 在PROMIS生命中的意义和目的尺度 (76%),友尺度 (76%) 和一般归属度尺度 (67%) 上达成共识.
- 生活参与测试 (52%) 和参与有意义的活动规模 (48%) 没有达成共识,需要进一步评估.
- 选择的尺度将进行测试,以确定在现实世界中收集数据时的可行性,实用性和影响评估.
结论:
- 建议使用PROMIS生命中的意义和目的尺度,友尺度和一般归属度尺度来测量ADRD的ADS中以人为中心的结果.
- 对于生活参与测试和参与有意义的活动规模,需要进一步的研究.
- 这些验证的措施将加强对ADS在改善ADRD生活质量的有效性评估.
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