确定儿童癌症AYA幸存者的担忧和需求:一个范围审查
Maria Jesus Moura1,2, Margarida Custódio Dos Santos2,3, Luísa Barros2
1Pediatric Psycho-oncology, Portuguese Institute of Oncology (IPO), Lisbon, Portugal.
Frontiers in psychology
|December 22, 2025
概括
青少年和年轻成年癌症幸存者面临着重大的心理和社会挑战. 他们需要量身定制的信息,支持和更好的沟通,以改善长期护理.
科学领域:
- 在瘤学瘤学.
- 幸存者护理 幸存者护理
- 青少年和年轻人的健康 (AYA)
背景情况:
- 青少年和年轻成人癌症幸存者 (AYA-CCS) 需要终身的专业护理.
- 本次审查解决了AYA-CCS的独特困难,担忧和需求.
研究的目的:
- 识别和映射AYA-CCS.的自我报告的困难,担忧和需求.
- 为制定适合年龄的幸存者护理模式提供信息.
主要方法:
- 根据PRISMA-ScR指南进行的范围审查.
- 从2014年到2024年搜索的主要数据库 (PubMed,Scopus,科学网络,EBSCOhost).
- 包括AYA-CCS (15-39岁) 的第一人称数据,使用定性,定量或混合方法.
主要成果:
- 24项研究符合纳入标准,揭示了关键问题:心理负担,长期影响,不孕不育,护理过渡,恐惧复发和社会财务挑战.
- 确定的需求包括量身定制的信息,心理支持和改善的沟通.
- 缺乏标准化的AYA-CCS定义阻碍了研究和护理.
结论:
- AYA-CCS经历了多方面的挑战,特别是心理困扰.
- 幸存者需要定制的信息,支持和沟通策略.
- 建议采用灵活,适应年龄的精神教育方法,并让幸存者参与计划设计. 分层研究和标准化定义至关重要.
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