在护理研究中推进现实世界的数据整合:关于日本下一代医疗基础设施法和欧盟EHDS框架的政策视角
Kazumi Kubota1,2,3,4, Saeko Ishibashi5
1Research Organization, Shimonoseki City University, Shimonoseki, Japan.
Japan journal of nursing science : JJNS
|December 22, 2025
概括
日本 日本 日本 日本 日本.
科学领域:
- 医疗信息学 医疗信息学
- 护理研究政策 护理研究政策
- 数据治理数据治理
背景情况:
- 在日本护理研究中利用真实世界数据 (RWD) 面临挑战.
- 日本现有的RWD框架是分散的.
- 国际比较强调了潜在的政策改进.
研究的目的:
- 分析日本护理研究中RWD使用的政策影响.
- 将日本的RWD框架与欧盟的欧洲健康数据空间 (EHDS) 规定进行比较.
- 为日本的RWD整合提出政策解决方案.
主要方法:
- 审查经验研究和政策文件.
- 对日本的RWD框架和欧盟的EHDS法规进行比较分析.
- 专注于数据标准化,互操作性,隐私和技术.
主要成果:
- 日本面临的障碍包括不一致的数据标准和分散的IT基础设施.
- 欧盟的EHDS提供了一个统一的数据共享框架.
- 日本需要改善数据治理和互操作性.
结论:
- 日本必须加强数据治理,建立集中存储库.
- 采用与欧盟EHDS一致的政策可以加强RWD整合.
- 改善RWD整合可以带来更好的护理实践和健康政策成果.
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