支持有意义的公众参与和参与健康研究:呼吁对未成功的赠款提案提供反
Matthias Eberl1,2, Sienna-Mae Yates3, Sarah Peddle3
1Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK. eberlm@cf.ac.uk.
资助者越来越重视患者和公众参与和参与 (PPIE) 研究. 然而,缺乏对不成功的资助申请进行建设性反,会阻碍研究人员的发展和公众的信任,破坏PPIE原则.
科学领域:
- 卫生研究资金 卫生研究资金
- 生物医学研究政策
- 患者和公众参与和参与 (PPIE)
背景情况:
- 资助者越来越多地强调PPIE在健康和生物医学研究中的包容性和问责制.
- 来自PPIE的实践经验增强了研究的相关性,可行性和影响.
- PPIE可以改善研究设计,招聘和传播,促进共同创造的知识.
研究的目的:
- 检查对不成功的赠款申请不充分反的影响.
- 突出PPIE期望与资助者沟通实践之间的脱节.
- 倡导在研究资助中改进反机制.
主要方法:
- 分析当前的资助者在不成功的赠款申请的反方面的做法.
- 讨论有限的反对研究人员和公共贡献者的影响.
- 在研究资助中加强响应机制的伦理和实际考虑.
主要成果:
- 许多资助者对未成功的赠款申请提供很少或没有反,通常是由于能力限制.
- 缺乏反会对研究人员的专业发展产生负面影响,尤其是在职业生涯早期和代表性不足的群体.
- 缺乏足够的反会削弱公众参与者对未来研究的信任和意愿.
结论:
- 当前系统缺乏有意义的反,破坏了PPIE的原则和潜力.
- 加强反机制是一种实际的必要性,也是资助者的伦理义务.
- 解决这种脱节对于科学进步和保持公众对科学的信任至关重要.
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