澳大利亚护理人员的经验和需求,当他们的孩子有童年语音失调:一个定性研究
Mary Dawoud1, Maryane Gomez1,2, Patricia McCabe1
1The University of Sydney, Sydney, Australia.
International journal of speech-language pathology
|December 23, 2025
概括
澳大利亚儿童语音失调儿童的照顾者面临着导航服务的挑战,需要更好的资金,信息和支持. 改善语音语言病理学服务需要了解家庭经历.
科学领域:
- 语音语言病理学 语言病理学
- 儿童沟通障碍 儿童沟通障碍 儿童沟通障碍
- 以家庭为中心的护理
背景情况:
- 设计有效的语音语言病理学服务需要了解消费者和家庭的需求.
- 患有童年言语失调症 (CAS) 的儿童的照顾者经常经历挑战,焦虑和内.
- 有限的研究存在于澳大利亚儿童护理人员的经验和需求.
研究的目的:
- 探索澳大利亚儿童护理人员与CAS.的生活经验.
- 了解护理人员对与CAS相关的家庭需求的看法.
主要方法:
- 进行了13名澳大利亚护理人员的在线焦点小组和采访.
- 探讨了诊断过程,服务获取和家庭需求.
- 使用反射性主题分析来解释数据.
主要成果:
- 护理人员的经历突出了家庭影响的挑战,语音语言病理学家专业知识的变化和系统性问题.
- 确定的护理人员需求包括更容易获得资金,更好地了解CAS,以及社会联系 ("找到我的部落").
结论:
- 澳大利亚的护理人员在服务中遇到困难,并与语音语言病理学家有不一致的经历.
- 确定的主要需求是改善资金,加强信息获取和加强社会支持网络.
- 语音语言病理学家应该加强家庭的支持,并批判性地评估他们在治疗CAS方面的能力.
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