自闭症儿童父母的经验和应对策略:一种定性研究
Archana Bagale1, Anil Raj Ojha2, Machhindra Lamichhane3
1School of Nursing and Midwifery, Patan Academy of Health Sciences, Kathmandu, Nepal.
PloS one
|December 23, 2025
概括
在尼泊尔,养育患有自闭症谱系障碍 (ASD) 的孩子的父母面临着重大的心理,身体,社会,职业和财务挑战. 尽管面临这些困难,但许多人表现出性,利用冥想和积极思考等应对策略.
科学领域:
- 神经发育障碍 神经发育障碍
- 父母的经验研究研究研究
- 全球健康 全球健康
背景情况:
- 自闭症谱系障碍 (ASD) 影响着全球不同的人群.
- 关于父母对 ASD 儿童抚养的观点的研究有限.
- 这项研究重点关注尼泊尔的父母,这是一个经验不足的地区.
研究的目的:
- 探索父母在尼泊尔养育患有自闭症儿童的实践经验.
- 确定这些家长采用的应对策略.
- 了解尼泊尔背景下家庭所面临的独特挑战.
主要方法:
- 描述性的现象学设计,在尼泊尔有9个故意选择的父母.
- 在尼泊尔进行的深入,半结构化的采访.
- 使用Colaizzi的方法分析数据,通过成员检查和同行汇报来确保可信度.
主要成果:
- 五个主要主题出现了:心理,身体,社会,职业和财务影响.
- 父母报告了情绪上的负担,疲劳,孤立,失业和高成本.
- 应对策略包括宗教音乐,冥想,积极思考和重塑经历.
结论:
- 尼泊尔的父母在抚养患有自闭症的孩子时面临着巨大的挑战,特别是母亲.
- 尽管诊断和护理,但资源有限和社会耻辱依然存在.
- 需要加强以家庭为中心的支持,可访问的服务和社区意识.
相关概念视频
Modeling in Therapy
360
Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
360
Autism Spectrum Disorder
892
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
892
Relationship with Parents: Attachment
206
Parent-child interactions lay the foundation for how we understand relationships throughout life. These interactions are not uniform across families; instead, they are shaped by a range of environmental, emotional, and behavioral factors unique to each caregiver-child dynamic. Social psychologists study these early relationships to understand how patterns formed in infancy influence social functioning and interpersonal behavior in adulthood.Attachment Theory and Early Relational ModelsJohn...
206
Parenting Styles
556
Diana Baumrind's four parenting styles — authoritarian, authoritative, neglectful, and permissive — each influence children's socio-emotional development differently.
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
556
Coping Strategies: Emotion Focused
398
Emotion-focused coping refers to a set of strategies aimed at managing the emotional impact of stressors, rather than directly addressing their causes. This approach involves altering one's emotional response to stressful situations to reduce their psychological effects. For example, individuals might talk with a friend or engage in activities like journaling to express their feelings. Such actions can help achieve emotional clarity or release, providing the psychological stability needed...
398
Coping Strategies: Problem Focused
386
Coping strategies are methods people use to manage, tolerate, or reduce the effects of stressors. These strategies involve both behavioral and psychological actions to handle stressful situations. One common approach is problem-focused coping, which aims to change or eliminate the source of stress rather than merely addressing its consequences. This method involves taking direct action to resolve the issue causing stress.
For example, consider a student who struggles to understand their...
For example, consider a student who struggles to understand their...
386


