公共卫生 公共卫生
Vaatausili Tofaeono1, Christy Nishita2, Justina P Tavana3
1American Samoa Community Cancer Coalition, Pago Pago, American Samoa.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
概括
凯尔登记处通过社区伙伴关系与夏威夷原住民和太平洋岛民 (NHPI) 建立信任,改善代表性不足的群体的健康研究参与和结果.
科学领域:
- 健康差异研究 研究健康差异研究
- 基于社区的参与式研究.
- 衰老和痴呆症的研究研究.
背景情况:
- 亚裔美国人,夏威夷原住民和太平洋岛民 (AANHPI) 的人口在健康研究中代表性不足.
- 历史研究的剥削导致了夏威夷原住民和太平洋岛民 (NHPI) 的不信任.
- CARE注册表旨在通过文化定制的参与来解决这些问题.
研究的目的:
- 解决AANHPI人群在衰老和痴呆症研究中的不足.
- 促进学术界和社区利益相关者之间的信任和伙伴关系.
- 实施文化定制的参与战略,以促进研究包容.
主要方法:
- 利用基于社区的参与性研究原则.
- 整合NHPI认识论和土著框架 (例如,塔拉诺亚,双眼视觉).
- 在CARE社区咨询委员会内设立一个NHPI工作组.
主要成果:
- 该NHPI工作组将社区价值观纳入注册表的设计和实施.
- 在决策过程中,NHPI利益相关者积极参与促进信任和权力共享.
- 在CARE模型中,已注册了超过10,000名AANHPI,并将超过5,000人转向研究.
结论:
- 协作模式优先考虑NHPI的声音,以加强研究参与.
- 这种方法旨在减少健康差异,改善研究成果.
- 这种模式促进了跨生命周期的文化知情研究.
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