公共卫生 公共卫生
Van Ta Park1,2,3, Janice Y Tsoh2,3,4, Bora Nam1
1University of California San Francisco School of Nursing, San Francisco, CA, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
概括
该CARE注册表增强了亚裔美国人,夏威夷原住民和太平洋岛民 (AANHPI) 人口的研究,解决了老龄化和痴呆症研究中的代表性不足问题. 它通过文化定制的方法成功招募了多样化的AANHPI参与者,改善了研究包容性.
科学领域:
- 老年学和阿尔茨海默病的研究研究.
- 健康差距和健康平等 在健康方面的差距和健康平等.
- 基于社区的参与式研究
背景情况:
- 亚裔美国人,夏威夷原住民和太平洋岛民 (AANHPI) 的人口在衰老和阿尔茨海默氏症和相关痴呆症 (ADRD) 研究中明显不足.
- 这种代表性不足限制了研究结果的概括性和对这些社区的文化相关干预措施的开发.
- 现有的研究往往未能采用以社区为中心的方法,阻碍了对AANHPI利益相关者的信任和参与.
研究的目的:
- 建立AANHPI研究和教育协作方法 (CARE) 注册表,以解决AANHPI在衰老,ADRD和护理研究中的不足.
- 实施以社区为基础的参与性研究原则,以促进学术和社区利益相关者之间的信任和伙伴关系.
- 开发和评估文化定制的参与策略,用于招聘,保留和纳入AANHPI参与者的研究.
主要方法:
- 该CARE注册使用基于社区的参与性研究原则,以社区和学术伙伴关系为指导.
- 参与者通过多种语言的在线,面对面或电话调查进行注册,收集社会人口统计,健康和护理信息.
- 该注册表积极支持研究人员,为专注于AANHPI种群的研究提供招聘推,特别是在衰老和ADRD方面.
主要成果:
- 截至2025年1月13日,已有10,485名AANHPI成年人注册,平均年龄为54.3岁,其中包括34.8%的老年人 (≥65岁).
- 大约14%的人报告了ADRD症状,40.4%的护理人员照顾了ADRD患者. 大多数参与者 (83.1%) 是外国出生的,其中50%的英语水平有限.
- 自2021年1月以来,CARE已经为51项研究提供了14900多份转诊,对老龄化和ADRD研究提出了大量招聘请求. 国家扩张正在进行中.
结论:
- 该CARE注册表现出一个成功的社区参与模式,以增加AANHPI参与衰老和ADRD研究.
- 文化定制的招聘和保留策略有效地吸引了各种AANHPI人群,包括那些英语水平有限的人群.
- 凯尔的扩张旨在进一步增强研究包容性,并在AANHPI社区中推进对衰老和痴呆症的科学理解.
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