公共卫生 公共卫生
Cíara O'Reilly1, Laura O'Philbin2
1The Alzheimer Society of Ireland, Dublin, Ireland.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
概括
爱尔兰 爱尔兰 爱尔兰 爱尔兰 爱尔兰 爱尔兰
科学领域:
- 公众和患者参与 (PPI) 在痴呆症研究.
- 医疗保健服务研究 医疗服务研究
- 老年学和衰老研究研究.
背景情况:
- 个人公共参与 (PPI) 的方法因文化和政策差异而在全球范围内有所不同.
- 爱尔兰的模式证明了在痴呆症研究中的有效和领先的参与.
- 爱尔兰的研究机构,患者组织和资助者重视PPI并将其纳入资金.
研究的目的:
- 突出爱尔兰在痴呆症研究中的个人公共参与 (PPI) 的独特模式.
- 展示痴呆症研究咨询小组 (DRAT) 在推进痴呆症研究和政策方面的作用.
- 为国际研究界提供有关适应成功PPI策略的见解.
主要方法:
- 通过PPI Ignite Ireland建立了一个国家支持系统,以促进PPI的卓越和创新.
- 综合PPI作为卫生研究委员会和爱尔兰阿尔茨海默病学会 (ASI) 的战略优先事项.
- 2019年成立了痴呆症研究咨询小组 (DRAT),包括痴呆症患者和家庭护理伙伴.
主要成果:
- DRAT影响组织的研究和政策,并与研究人员合作设计有影响力的研究.
- 举例说明了成功的国家和国际合作,优先考虑相关性,有效性和影响.
- 爱尔兰的PPI模式强调了结构化的框架,协作和PPI贡献者的能力建设.
结论:
- 综合多样化的生活经验,以DRAT为例,显著丰富了痴呆症研究过程.
- 爱尔兰的PPI方法,包括通过在线会议和研讨会进行知识交流,为全球适应提供了有价值的见解.
- 结构化的PPI框架和能力建设赋予贡献者权力,并加强PPI在痴呆症研究和政策中的作用.
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