公共卫生 公共卫生
Olufisayo Oluyinka Elugbadebo1, Faithful Moposi Akintade2, Cynthia Olapeju Olawuyi3
1University College Hospital, Ibadan, Oyo, Nigeria.
参与者参与痴呆症研究至关重要,但诸如未满足的期望和不良沟通等挑战阻碍了低收入和中等收入国家 (LMICs) 的保留. 提高透明度和传播发现是伦理和有影响力的研究的关键.
科学领域:
- 老年学是一门学科.
- 神经科学是一个神经科学.
- 公共卫生 公共卫生
背景情况:
- 在研究中招募和留住参与者,特别是老年人,面临重大挑战.
- 低收入和中等收入国家 (LMICs) 在痴呆症研究中面临着独特的障碍,原因是未满足参与者的期望和潜在的消耗.
- 了解参与者的经验对于改善在LMICs中痴呆症研究中的参与和伦理实践至关重要.
研究的目的:
- 探索尼日利亚西南部痴呆症研究参与者的经验和观点.
- 确定加强参与者参与,保留和在LMICs痴呆症研究中的伦理行为的策略.
- 在资源有限的环境中,解决痴呆症研究参与者面临的具体挑战.
主要方法:
- 采用了定性叙事方法,利用关键信息人采访 (KIIs) 与参与痴呆研究的15个家庭二元组进行了采访.
- 采访于2024年1月至9月期间在尼日利亚西南部的社区或诊所设置中进行.
- 用NVivo软件对转录的采访数据进行了主题分析,以确定关键主题和模式.
主要成果:
- 参与者 (年龄在64-86岁) 报告了挑战,包括距离,漫长的采访,苛刻的活动,激励不足以及缺乏参与研究规划.
- 关于获得医疗保健和治疗的未满足期望是不满的来源,以及研究结果的沟通不良.
- 尽管面临挑战,参与者表现出对未来研究的意愿,重视增加痴呆知识,认知活动和有效传播结果.
结论:
- 将研究与患者参与的方法结合起来,对于提高满意度和保留率至关重要.
- 确保透明度,公平补偿和有效传播发现对于在资源有限的环境中进行伦理和有影响力的研究至关重要.
- 解决参与者的期望和沟通差距可以培养信任,并鼓励继续参与痴呆症研究.
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