公共卫生 公共卫生
Sathya Karunananthan1, Isabella Moroz2, Nalia Gurgel Juarez2
1University of Ottawa, Ottawa, ON, Canada.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
概括
让服务不足的社区参与痴呆症研究对于了解他们的独特需求和改善护理至关重要. 参与式的共同设计方法有助于弥合差距,确保在阿尔茨海默病研究中纳入和重视各种声音.
科学领域:
- 健康 公平 卫生 公平
- 痴呆症研究 痴呆症研究
- 健康的社会决定因素
背景情况:
- 种族和社会经济地位等社会决定因素会影响痴呆风险和护理机会.
- 服务不足的社区在痴呆症研究中代表性不足,造成知识差距.
- 解决这些差异需要包容性的参与和研究实践.
研究的目的:
- 探索在痴呆症研究中吸引服务不足的人口的挑战.
- 为包容性参与和共同设计提出基于证据的战略.
- 提高代表性,确保满足不同社区的护理需求.
主要方法:
- 对参与式研究经验的审查.
- 共同设计,包容性研究方法的开发.
- 案例研究:共同设计面试指南和招聘eConsult研究与各种痴呆症患者护理人员二元.
主要成果:
- 在吸引多样化的痴呆症患者群体时发现了挑战.
- 证明了参与式共同设计在促进包容性的有效性.
- 在eConsults上成功收集了来自种族和经济多样化的群体的观点.
结论:
- 参与式的共同设计对于包容性痴呆症研究至关重要.
- 协作方法提高了代表性,并解决了特定的社区需求.
- 促进国际合作促进了阿尔茨海默病和相关痴呆症研究和护理的公平.
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