公共卫生 公共卫生
Phyllis Timpo1, Rhiana Schafer2, Hanna Clem3
1University of Chicago, Chicago, IL, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
概括
在健康老龄化和阿尔茨海默氏症研究中心 (HAARC) 的社区参与研究 (CER) 改善了老龄化和痴呆症研究中的代表性. 这些策略成功地与多样化的人口联系起来,增强阿尔茨海默病和相关痴呆症 (ADRD) 研究的招聘.
科学领域:
- 老年学和神经科学 在
- 公共卫生与社区参与
- 临床研究和招聘策略
背景情况:
- 成立于2023年的健康衰老和阿尔茨海默氏症研究中心 (HAARC) 专注于衰老,阿尔茨海默氏症和相关痴呆症 (ADRD),强调弹性和健康跨度.
- 社区参与的研究 (CER) 对于HAARC中心的使命至关重要,即确保ADRD研究的代表性观点.
研究的目的:
- 概述社区参与研究 (CER) 和HAARC中心在18个月内实施的招聘策略.
- 详细说明用于促进社区伙伴关系和加强参与者参与衰老和痴呆症研究的方法.
主要方法:
- 部署了多项CER工作,包括招聘多样化的员工,建立社区伙伴关系,整合反,举办活动和维护大使委员会.
- 开发了对文化敏感的编程,并利用社交媒体进行教育,支持四个活跃的HAARC中心研究.
- 利用研究注册表和REDCap进行参与者参与,数据管理和问责制.
主要成果:
- 参与了126个社区活动,接触了1500多人,并与70名年龄在50-92岁的潜在参与者 (80%的黑人) 建立了联系.
- 与9个社区,14个机构和7个医疗组织建立了强有力的合作伙伴关系,80%的节目针对的是代表性不足的群体.
- 实施了诸如痴呆症演示,痴呆症友好社区",问医生"表和记忆套件分发等倡议,HAARC中心作为芝加哥唯一的ADNI多样性中心.
结论:
- 与当地组织,倡导团体,护理人员和社区成员建立伙伴关系,以实践经验为基础进行研究.
- 在HAARC中心的CER倡议旨在改善研究代表性,推动老龄化和痴呆症护理的公平进步.
- 哈尔克中心加强了对包容性和推进老龄化和痴呆症研究招聘科学的承诺.
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