患者参与研究的宪章:对当前证据的全面审查
Jenny Martínez1, Catherine Verrier Piersol2, Richard W Hass1
1College of Population Health Thomas Jefferson University Philadelphia Pennsylvania USA.
Public health challenges
|December 24, 2025
概括
合作开发的研究研究宪章改善了患者参与的研究中的共享治理和权力共享. 确保宪章是有效的,系统的和包容性的,提高了研究伙伴关系和质量.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和社区参与研究.
- 合作治理模式 合作治理模式
背景情况:
- 研究研究宪章对于在合作研究中建立共享治理和权力动态至关重要.
- 这些宪章是为每项研究单独协商的,反映了独特的伙伴关系动态和优先事项.
- 了解这些宪章的发展,结构和实施对于有效的参与患者的研究至关重要.
研究的目的:
- 系统地审查和综合现有关于研究研究宪章的创建,组件和应用的证据.
- 绘制与患者相关的研究计划中使用的研究宪章的地图.
- 确定最佳实践和研究研究宪章的使用变化.
主要方法:
- 从2019年1月到2025年1月,全面搜索全球英语出版的同行评审文献.
- 包括17个引用,包括5篇期刊文章和12个研究宪章,来源于以患者为中心的结果研究机构 (PCORI) 存储库.
- 分析重点是确定研究宪章的开发,结构和实施方面.
主要成果:
- 审查确定了一系列研究研究宪章,其质量,详细程度和方法方法的差异很大.
- 开发过程,结构元素和研究宪章的内容在审查的文献中并不统一.
- 一个显著的部分审查的宪章来源于PCORI的参与工具和资源库.
结论:
- 研究研究宪章在质量,细节和方法上表现出相当大的差异.
- 制定有效,系统和包容性的研究宪章,与研究伙伴共同创建,对于加强治理和参与至关重要.
- 采用完善的章程可以显著提高以患者为中心的研究的质量和包容性,因此需要进一步调查.
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