设计一个应用程序,以促进儿童癌症的年轻成年幸存者的自我管理:发展和可用性研究
Meredith K Reffner Collins1, Kristine Levonyan-Radloff1, Jeffery McLaughlin2,3
1Division of Pediatric Hematology/Oncology, Rutgers Cancer Institute, Rutgers, The State University of New Jersey, New Brunswick, NJ, United States.
JMIR cancer
|December 24, 2025
概括
年轻的癌症幸存者现在可以访问一个移动应用程序,旨在帮助他们管理治疗的晚期影响. 这款用户友好的应用程序是通过与幸存者的共同创作开发的,以提高过渡准备和医疗保健参与度.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 患者倡导 患者倡导
背景情况:
- 年轻的癌症幸存者面临着巨大的挑战,转向以成人为中心的护理,经常经历晚期和长期的治疗效应.
- 只有不到20%的幸存者在成年时接受建议的年龄相适应的基于风险的护理.
- 一个基于网络的干预,管理你的健康 (MYH),显示出希望,但用户希望移动可访问性.
研究的目的:
- 将现有的MYH网络干预转化为移动应用程序.
- 通过代的共同创作过程来评估移动应用程序的可用性和用户吸引力.
- 为未来的同行指导教育干预准备移动应用程序.
主要方法:
- 第1阶段涉及与3个利益相关方组的关键信息员研讨会,以收集有关应用程序内容和设计的意见.
- 第二阶段包括对25名年轻的癌症幸存者进行可用性测试,以评估技术的接受性,可用性和美学吸引力.
- 一个代的设计过程结合了用户反来完善应用程序.
主要成果:
- 关键信息人员证实,应用程序的内容解决了幸存者的障碍;设计建议各不相同,对游戏化有不同的看法.
- 可用性测试的参与者在技术接受,可用性和美学方面对应用程序进行了高度评价.
- 质量反表明该应用被认为是有用的,易于使用和熟悉的;建议集中在增强可用性和交互性.
结论:
- 在共同创作过程中,成功开发了一个移动应用程序,满足了年轻成人癌症幸存者的用户需求和期望.
- 这款精致的应用程序被普遍认为是有用和视觉上有吸引力的.
- 根据用户对未来干预试验的建议,纳入了进一步的改进,包括增强的互动性和反机制.
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