痴呆症护理研究和心理社会因素
Jeong Eun Kim1, Cristina de Rosa2, Joshua D Grill3
1School of Nursing, University of Pittsburgh, Pittsburgh, PA, USA.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 25, 2025
概括
患有阿尔茨海默病和相关痴呆症 (ADRD) 的人和他们的护理伙伴更喜欢各种方法来接收生物标志物测试结果,包括纸质和电子邮件. 他们也表现出对新兴的人工智能工具的不同态度,以寻找健康信息.
科学领域:
- 神经科学是一个神经科学.
- 生物标志物发现发现
- 以患者为中心的护理
背景情况:
- 阿尔茨海默病和相关痴呆症 (ADRD) 的诊断越来越依赖生物标志物测试.
- 对这些复杂的结果向患者和护理伙伴 (CP) 进行有效的沟通至关重要,但尚未得到充分研究.
- 了解信息传递和寻求行为的偏好对于患者参与至关重要.
研究的目的:
- 描述认知症状参与者及其CP接受和共享认知健康信息的偏好.
- 评估人们对虚拟平台和人工智能 (AI) 驱动系统的态度,以获取与ADRD相关的健康信息.
主要方法:
- 一种混合方法的方法,结合了定量问卷和定性焦点小组讨论 (FGD).
- 涉及50名参与者和36名CP来自多站点患者和家庭成员对生物标志物告知ADRD诊断的反应 (PARADE) 研究.
- 收集关于接受/共享结果的偏好以及对新型信息搜索技术的态度的数据.
主要成果:
- 纸质副本 (84%的参与者,69.4%的CP) 和电子邮件 (66%,72.2%) 是接收ADRD测试结果的首选.
- 报告的高舒适度是与家人 (92-97.2%) 和医疗保健提供者 (98-97.2%) 分享结果.
- FGDs揭示了对人工智能工具的多样化参与以及对可访问,以人为中心的信息系统的渴望.
结论:
- 在个人喜欢如何接收和分享ADRD生物标志物测试信息方面存在显著的多样性.
- 目前的通信方法可能无法完全满足患者和CP的需求,突出显示了用户友好的系统的差距.
- 定制,可访问和以人为中心的方法对于导航复杂的ADRD健康信息至关重要.
更多相关视频
08:36The Immersive Cleveland Clinic Virtual Reality Shopping Platform for the Assessment of Instrumental Activities of Daily Living
Published on: July 28, 2022
4.3K
10:13Assessment of Age-related Changes in Cognitive Functions Using EmoCogMeter, a Novel Tablet-computer Based Approach
Published on: February 14, 2014
14.1K
相关概念视频
01:30Dementia
480
Dementia is a collective term for cognitive disorders primarily affecting memory, thinking, and reasoning. It is not a specific disease but a syndrome, with Alzheimer's disease being the most common cause, accounting for approximately 60-80% of cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. Dementia affects millions worldwide, particularly older adults, though it is not a normal part of aging.
The progression of dementia is generally gradual....
The progression of dementia is generally gradual....
480
01:29Psychological and Sociocultural Causes of Schizophrenia
436
Schizophrenia, a complex psychiatric disorder, has been historically misunderstood. Early psychological theories attributed its origins to childhood trauma and unresponsive parenting. However, contemporary research largely rejects these notions, favoring the vulnerability-stress hypothesis. This model proposes that individuals with a genetic predisposition to schizophrenia may develop the disorder following exposure to significant environmental stressors. Notably, studies on high-risk...
436
01:26Alzheimer's Disease: Overview
1.5K
Alzheimer's Disease (AD) is a continually advancing neurodegenerative disorder, distinguished by escalating memory loss, cognitive dysfunction, and dementia. The disease unfolds in three stages: preclinical, mild cognitive impairment (MCI), and dementia. Its onset is insidious, and the progression gradual, with the cause not well explained by other disorders.
The clinical diagnosis of AD hinges on the presence of memory and other cognitive impairments. Biomarkers, such as changes in Aβ...
The clinical diagnosis of AD hinges on the presence of memory and other cognitive impairments. Biomarkers, such as changes in Aβ...
1.5K
01:22Alzheimer's Disease: Treatment
736
Alzheimer's Disease (AD), a neurodegenerative disorder, is pathologically identified by amyloid plaques and neurofibrillary tangles composed of tau protein. AD pharmacotherapy aims to manage cognitive symptoms, delay disease progression, and treat behavioral symptoms. The treatment is primarily symptomatic and palliative, with no definitive disease-modifying therapy available. Cholinesterase inhibitors, including donepezil (Aricept), rivastigmine (Exelon), and galantamine (Razadyne), are...
736
01:30Cognitive Development During Adulthood
737
Cognitive development continues throughout adulthood, undergoing significant shifts across early, middle, and late stages. Individual transition occurs from adolescent idealism to pragmatic and adaptable thinking in early adulthood. During this period, individuals learn to integrate personal beliefs with the recognition that other perspectives are equally valid. Exposure to the complexities of modern society, diverse experiences, and higher education contribute to this adaptive thought process,...
737
01:29Documentation in Long-Term and Home Healthcare Setting
1.4K
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Long-Term Care Facilities
1.4K