痴呆症护理研究和心理社会因素
George Philip1, Marie Y Savundranayagam1, Anita Kothari1
1Western University, London, ON, Canada.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 25, 2025
概括
在种族化家庭中,痴呆症的污名往往在日常谈话中是微妙的,影响着对衰老和记忆的看法. 了解这些细微差别是解决这个问题的关键,并支持患有痴呆症的人 (PLWD).
科学领域:
- 老年学是一门学科.
- 社会学 社会学 社会学
- 语言学的语言学.
背景情况:
- 与痴呆症相关的耻辱制造了负面的刻板印象,羞耻和孤立,阻碍了寻求帮助的行为,增加了护理人员的压力.
- 这些污名化的看法不成比例地影响生活在痴呆症 (PLWD) 的种族化人员及其照顾伙伴.
- 人们对耻辱如何在种族化个体之间的日常对话中表现得很少知晓.
研究的目的:
- 通过种族化的PLWD与他们的家庭护理伙伴之间的自然主义对话来探索与痴呆症相关的耻辱感.
- 了解污名在种族化社区的日常互动中经历和延续的微妙方式.
主要方法:
- 分析来自自然主义对话的音频录音,涉及患有痴呆症的加拿大人及其家庭护理伙伴.
- 利用了来自加拿大神经衰老协会 (CCNA) 在五个种族化社区25个二元组的子样本的对话数据.
- 从成绩单中提取并组织代码成主题和子主题,以识别与痴呆相关的耻辱.
主要成果:
- 出现了三个主题:对痴呆症和衰老的负面看法 (包括刻板印象和年龄歧视),家庭负担 (压力和决策) 和评估记忆 (通过测试和社会历史).
- 在家庭中,与痴呆症相关的耻辱通常在日常谈话中不是公开的,直接的或故意的.
- 通过微妙的语言和互动模式来确定污名是如何延续的.
结论:
- 这项研究是第一个在种族化PLWD和他们的家庭护理伙伴之间的日常对话中检查痴呆相关的耻辱.
- 这些发现为人们更深入地了解日常语言中对耻辱的微妙延续提供了帮助.
- 未来的研究将使用CCNA数据对白色PLWD二体中与痴呆相关的耻辱进行比较.
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