与照顾唐氏综合征儿童相关的成本和经济负担:系统性审查
Jyothi Shetty1, Ankitha Shetty2, Suneel Mundkur3
1Manipal School of Commerce and Economics, Manipal Academy of Higher Education, Manipal, Karnataka, India.
BMJ paediatrics open
|December 25, 2025
概括
照顾患有唐氏综合征 (DS) 的儿童对家庭造成了重大直接和间接成本. 实施更好的支持系统可以帮助减少经济负担和医疗保健费用.
科学领域:
- 医疗保健经济学 医疗保健经济学
- 儿科健康 儿科健康
- 遗传学和公共卫生
背景情况:
- 唐氏综合症 (DS) 为家庭带来了独特的挑战,影响了家庭的财务状况.
- 了解与DS护理相关的经济负担对于开发有效的支持系统至关重要.
研究的目的:
- 总结一下家庭在照顾唐氏综合征 (DS) 儿童时所承受的直接和间接成本.
- 评估家庭为患有DS的儿童提供照顾的整体经济负担.
主要方法:
- 对2000年至2024年8月期间发表的英语语言研究进行了系统审查.
- 来自24项纳入研究的数据进行了叙事综合,并以主题分析定性数据.
- 成本被膨胀到2025年1月,并以美元报告.
主要成果:
- 与没有DS的儿童相比,患有DS的儿童的费用要高得多,处方药的费用是其六倍.
- 患有DS的婴儿的护理费用 (3453美元) 比较高的孩子 (13-17岁: 1157美元) 高.
- 家庭报告了医疗,教育和康复服务的额外费用,导致了财务压力.
结论:
- 更高的财务负担需要开发强大的护理系统和支持机制.
- 解决DS护理的经济影响需要标准化的成本评估方法和进一步的研究.
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