痴呆症护理研究和心理社会因素
Carrie A McAiney1,2, Emma Bender2, Dana Kirkbride2
1University of Waterloo, Waterloo, ON, Canada.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 25, 2025
概括
文化适应的痴呆资源是为中国,南亚和意大利社区共同设计的,以打击耻辱和改善支持. 这些资源解决了对各种生活在痴呆症的人群的可访问信息的关键需求.
科学领域:
- 老年学是一门学科.
- 公共卫生 公共卫生
- 社会学 社会学 社会学
背景情况:
- 与痴呆相关的耻辱不成比例地影响了种族社区,造成了服务障碍.
- 对这些人群缺乏文化相关的痴呆资源和信息.
- "向前与痴呆症 (FWD) "倡议旨在减少痴呆症患者的耻辱感,并促进痴呆症患者的福祉.
研究的目的:
- 为中国,南亚和意大利社区共同设计文化适应和翻译的痴呆资源.
- 解决文化相关信息的差距,为痴呆症影响的种族群体提供支持.
- 为了在不同社区中打击与痴呆相关的耻辱.
主要方法:
- 组建了共同设计团队,包括家庭/朋友护理合作伙伴和健康/社会护理提供者.
- 现有的FWD资源被调整为社区特定的图像,故事和例子.
- 资源被翻译成简体中文/传统中文,旁遮普语,印度语,乌尔都语和意大利语.
主要成果:
- 在一年内创建了187个新改编的资源,包括核心材料和护理合作伙伴的故事.
- 资源以多种语言提供,包括英语和法语.
- 一个营销活动达到超过157,000个人,有显著的观点和下载.
结论:
- 共同设计和翻译的FWD资源有效地解决了对文化上适当的痴呆症支持的重大需求.
- 这些资源为痴呆症患者及其来自种族背景的护理伙伴提供了重要信息和支持.
- 该倡议强调了文化敏感方法在痴呆症护理和意识方面的重要性.
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